Katy Mena's struggle with Multiple Sclerosis started when she was 19-years-old.
Mena adds, "I had been home for the weekend and I was getting ready to head back to the University of Georgia when all of a sudden my vision went double and I was seeing two of everything."
A spinal tap and MRI revealed news that's hard to swallow for an adult, much less a teenager.
Mena says, "Itching and tingling on my skin, the inability to use my left arm, consistent limp in my left leg. It feels like a band is strapped around your torso and just squeezing in on it."
That's what Mena says she had to live with until she discovered a treatment called Lemtrada.
Mena adds, "Its an IV Chemo. It's still in research trials."
But that's where it will stay for now.
The FDA recently decided not to approve Lemtrada, even though research shows it is accepted in Canada, Europe, and Mexico.
Mena adds, "It's upsetting to me for the patients who won't have the opportunity to try this drug that really is so important in being able to manage and live your life."
Mena's mother also suffered from MS.
She recently passed away and that has been the driving force behind getting a petition signed and Lemtrada approved.
Mena adds, "If this had been available early on in the disease, I think she would still be with us today."